Couldn't Sleep, Wouldn't Sleep!
I don't know, maybe I should've got up but I found myself unable to rest.
I made myself a drink(well, I had some in the flasks I was able to use)
I listened to the radio(sort of)but my mind was wandering.
Have we been given all the treatment that we should?
Is there is still a possibility that if her strength builds up she could manage a colostomy.
Why did they not do something when the radio therapy worked and the growth reduced, why not give radio therapy another shot, often RT works and is enough.
Sometimes pain does not necessarily mean the cancer is worse and it can be that a growth is pressing on a nerve.
Were we wrong when that Dr said that he wanted to take Mum into a cottage hospital(after we'd been given reasonably good news by the consultant's representative at the hospital in January)to say no, when they had said Mum could be stabilised and they didn't think it would spread and would probably stay local to the area(as best as anyone can say)
They had originally said that they would try RT again after 6 months, the end of March is approx 6 months.
Has Mum being placed in a Nursing Home meant they've basically side tracked her and the medical profession has forgotten us? And basically we are in hospice mode? Or should we be? That they've given up.
And so on...
I did not sleep until 5am(ish)and up on waking my stomach is in knots.
Oh well, I'm off to the usual...Nothing different unless Mum is when I arrive...I'll make my flasks up, take my soup, smoothies, complan, coffee, tea, rice pots and yogurts. She has fruit juice, water, custards and chocolate in her room. I'd like to be able to offer some solid food but I don't know what I could make here to take in.
Still its all calories and nourishment.
Speak Soon...(The problem regarding posting of comments seems to have righted itself)
I made myself a drink(well, I had some in the flasks I was able to use)
I listened to the radio(sort of)but my mind was wandering.
Have we been given all the treatment that we should?
Is there is still a possibility that if her strength builds up she could manage a colostomy.
Why did they not do something when the radio therapy worked and the growth reduced, why not give radio therapy another shot, often RT works and is enough.
Sometimes pain does not necessarily mean the cancer is worse and it can be that a growth is pressing on a nerve.
Were we wrong when that Dr said that he wanted to take Mum into a cottage hospital(after we'd been given reasonably good news by the consultant's representative at the hospital in January)to say no, when they had said Mum could be stabilised and they didn't think it would spread and would probably stay local to the area(as best as anyone can say)
They had originally said that they would try RT again after 6 months, the end of March is approx 6 months.
Has Mum being placed in a Nursing Home meant they've basically side tracked her and the medical profession has forgotten us? And basically we are in hospice mode? Or should we be? That they've given up.
And so on...
I did not sleep until 5am(ish)and up on waking my stomach is in knots.
Oh well, I'm off to the usual...Nothing different unless Mum is when I arrive...I'll make my flasks up, take my soup, smoothies, complan, coffee, tea, rice pots and yogurts. She has fruit juice, water, custards and chocolate in her room. I'd like to be able to offer some solid food but I don't know what I could make here to take in.
Still its all calories and nourishment.
Speak Soon...(The problem regarding posting of comments seems to have righted itself)
posted by The Great Gildersleeve | 1:12 pm
4 Comments:
Don't beat yourself up, Gildy.
You've always done your best and nobody can do better than that.
And don't worry about those who comment here. You've enough on your plate and we all know it.
If you have questions about the Home or about you Mum, write a list so you don't forget anything and ask for an interview with whoever's in charge.
That's a perfectly reasonable thing to do.
Hi Gildy,
I've not looked at your blog for ages until a few days ago and I can see how things are very different from when I last looked in.
Just thought I'd let you know I'm thinking of you and your mum at what must be a difficult time.
Thanks for your support and nice to see you again Northern Bloke...how lives can change is such a short space of time.
You can appreciate that it's a wonder I am managing to manage my own blog under such circumstances.
Nice to see comments can be posted again...
Hi Anthony
Just wanted to let you know I am thinking of you and your Mum.
In fact checking out your blog is on my list of things to do first thing in the morning!
Thank goodness it has cooled down. I am ashamed to say that I loathe such strong sunshine, makes me feel so out of sorts!
Take care
Carol
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