Result!!!
The best that we could hope for in the circumstances...there is in the background a worry that Dr's and Social Workers can force someone into care virtually at the click of their fingers(it can be done very quickly)and it appears that those affected have little or no chance of redress but...thankfully(Please God)we are not in that category and hopefully we will find ourselves being treated fairly. To me its another way of using the law and seems similar to where someone with mental problems are sanctioned.
Well, I'm not sure we did but whatever we said worked! Perhaps we had right on our side and also I was able to point out the short comings in their system.
For now we are back to almost where we were when all this started.
1 A carer calling alternative days(not every day)
2 A carer calling later at time than present, probably 11am instead of 9.30am/10am
3 Three days Mum will have a bath(the fourth day will be a blanket bath)
4 The Social Worker will call more regularly and doing so will replace the Dr who we had to deal with and I understand she'll report to him how Mum is but I will still refuse to deal with him and cancel his visits if he tries to call. It is my right and I want to deal with "Our" family Dr or others Mum and myself are comfortable with.
So they have some of the changes they wanted but I think that we have the better deal.
The Social Worker was definitely pleased with how she saw Mum today. I am happier with this result. Why did we have to go through all that we have and fight to get to this point?
The Social Worker thinks we should be getting those supplements to help build Mum up too and says we may have success if/when I approach our own Dr. I want that other Dr out of the picture.
Well, I'm not sure we did but whatever we said worked! Perhaps we had right on our side and also I was able to point out the short comings in their system.
For now we are back to almost where we were when all this started.
1 A carer calling alternative days(not every day)
2 A carer calling later at time than present, probably 11am instead of 9.30am/10am
3 Three days Mum will have a bath(the fourth day will be a blanket bath)
4 The Social Worker will call more regularly and doing so will replace the Dr who we had to deal with and I understand she'll report to him how Mum is but I will still refuse to deal with him and cancel his visits if he tries to call. It is my right and I want to deal with "Our" family Dr or others Mum and myself are comfortable with.
So they have some of the changes they wanted but I think that we have the better deal.
The Social Worker was definitely pleased with how she saw Mum today. I am happier with this result. Why did we have to go through all that we have and fight to get to this point?
The Social Worker thinks we should be getting those supplements to help build Mum up too and says we may have success if/when I approach our own Dr. I want that other Dr out of the picture.
posted by The Great Gildersleeve | 12:54 pm
10 Comments:
Well done, you.
You are well able to care for your mum but it will be good to have a little help every other day.
It occurs to me that, when the better weather comes along, you might want to take her out for short trips. If so, the Red Cross used to loan items such as wheelchairs so that might be worth bearing in mind.
Even if it's just as far as the corner shop, it would make a change for her.
I think its turned out well VQ. And your suggestion sounds a good idea.
The Social Worker thinks that I should try and get those nourishing drinks/granuals through "Our" family Dr when he returns and she says she has brought up that we should be having them.
So keeping up the fight and pressure even when I thought I was getting nowhere has paid off and it shows I was right to keep at it!
Perhaps my blog will be less fraught in future.
We've had a letter confirming Mum's next hospital appointment in the middle of March...
Hope that goes well...
Well Gildy,it just shows that being an awkward bastard sometimes pays dividends
;-)
I wonder what is written on the notes..."don't get into discussion with son"
hehehe
Thanks Span :-)
A taxi driver was very happy for us as he likes Mum(but he made a similar type of observation)in that he said "What you are saying is that you have your own way of going on and carers etc...are upsetting your routine!"
He laughed when he said it but said he has seen so many situations that are similar.
Another driver says his Father in Law has carers and they come in and totally ignore his Mother in Law. His wife wants to say something but the MIL doesn't want to cause problems so it goes unresolved.
I bumped into another person that Mum used to baby sit for and he had a time with carers coming in(not at present as he has thankfully beaten bowel cancer)lets hope it stays that way...and he had problems about them never arriving when they should so we are not alone.
We are virtually back to where we started. I cannot think that an ordinary member of the public wins very often if that is the right word.
It would be so tempting to go back(whilst I have access)and say to those on the old forum I helped run and in particular the two nasty members who had most to say about Mum and me in a critical way and say I told you that I was right!
And we were being treated unfairly by those who were supposed to be making life easier for us but you know what, they'd not change their opinions or apologise so there isn't much point.
I must've said somewhere on the blog how silly it has been when a District Nurse turns up and they have no knowledge of Mum's case.
Yes, they may be able to say whether something isn't quite right but when you need someone who can perhaps compare whether the tumour is stable or has changed you need someone who sees her quite often.
I think the Social Worker was unhappy/surprised that at least twice one could not compare it because she had never seen it.
Even the day that the DN returned with "That" Dr...I discovered she was again someone who had never ever seen Mum. And I now know that the Social Worker actually asked on the afternoon after talking to me "Do we not have anyone who has seen Gildy's Mum before?"
You know what?
As I write this "That" Dr who called...All he did was take Mum's blood pressure and temperature which was correct. He did not ask many questions...and most importantly and I think I would've done this if I was a Dr...he never looked at Mum's tumour.
He got the most upto date information from "Us" as we'fd just seen the specialists who are looking after Mum and we had seen the day before.
I think he was still being brainwashed by the District Nurse who has caused most/if not all of our problems. Even if she tries to argue her intentions were right.
And another thing...the DN that called on Tuesday after the intervention of the Social Worker...she said she would come and see Mum again today(The Social Worker knew that was planned to)
As we had a glowing report from them both we could not understand why the DN was coming back again so quickly.
Guess what!
We waited...and waited and waited.
She never called.
Those who are in charge make as many or more mistakes than those they are ready to criticise.
Thanks for all those replies Gildy. Sorry not to have replied before, been out today.
Also, just ignore anyone online who suggests you are doing something bad/wrong, how the f*%$ can they possibly know anything about it.
And, always trust your own judgement too, several years ago my daughter would be dead if we had just listened to one doctor who happened to in charge of the ward overnight and just thinking about it now makes me shake with rage.
And though I think you would understand and have sympathy with my situation even if that had not happened with your daughter...I know that having had such an experience "We" can connect.
I am so happy all came out ok for you.
Sadly there are too many stories that are similar...
We know medicine is not an exact science and often it depends on gut feelings but often the errors are often not big mistakes but little one's but the results are tragic.
And we also know that not everyone can be cured but too many pass away because of some tiny thing that has been missed.
Post a Comment
<< Home